We had a conversation with a patient from Southmead hospital about their recent experiences. As patients we are often facing similar issues – long waits for appointments, not enough resources for treatments – but we are also isolated. Read about the experience of a cancer patient in Bristol here. It is about time to get organised beyond this or that charity…
This article was circulated as part of Vital Signs Magazine no.6 amongst workers at Southmead hospital and the BRI
I am diabetic. I get severe episodes of hypos, which can lead to drowsiness, disorientation, fits, or even unconsciousness. For a while I was treated by specialists at Kings College in London, but they said that I had to transfer to my local diabetic department in Bristol. They promised me that I would have two appointments with the local diabetic specialist and two with a diabetic nurse a year. I actually only had two appointments, and then the specialist consultant changed. During the whole of 2025 I didn’t get a single appointment. I had to apply pressure by phoning up the department and then finally going into hospital and speaking to staff directly. Only through this direct application of pressure did I finally get an appointment in November 2025. The doctor said: “You can be lucky that you got at least one appointment, most patients don’t even get that.”
I think there is a link between me not getting any appointments in 2025 and my hospitalisation in October 2025. I became unconscious and collapsed in the shower. A friend who is linked to my glucose monitoring App had to force open the door, found me and called the ambulance. I spent 24 hours in A&E and on ward corridors, it wasn’t the best experience.
I need the appointments because I want to get an Omnipod 5 insulin pump that is compatible with my Dexcom 7 blood sugar monitor. For a period of time compatibility between monitors and pumps was an issue, as they are from different private companies. Now that this issue has been solved there is a new dispute going on between the NHS procurement department and Insulet, the Omnipod insulin pump manufacturer (private sector). As a consequence it is difficult to get the pump I need through the NHS. This is frustrating.
The question is how we can organise as patients in order to get what we need. There are charities such as Diabetes UK, but they only lobby, they don’t actually apply direct pressure. With so few appointments at the diabetic department it is also difficult to meet other patients regularly. I spoke to staff at Gate 12 and explained the situation. They were very understanding. They said that since Covid they had less staff and more patients. A nurse I talked to seemed open to a joint approach by staff and patients in order to improve the situation.
If you experienced similar problems, why don’t you get in touch?



